Comments on: Cystic Fibrosis saved my life… http://breathe4tomorrow.wordpress.com/2008/12/19/cystic-fibrosis-saved-my-life/ Making life easier one breath at a time... Tue, 20 Jan 2009 20:05:52 +0000 http://wordpress.com/ hourly 1 By: Jenn McLean http://breathe4tomorrow.wordpress.com/2008/12/19/cystic-fibrosis-saved-my-life/#comment-99 Jenn McLean Tue, 20 Jan 2009 20:05:52 +0000 http://breathe4tomorrow.wordpress.com/?p=49#comment-99 wow, thanks for sharing, that's a scary situation you had! I probably would have freaked out even more in your position if it were her where I live. I live in Fairbanks, Alaska, and I don't see the docs here unless I can't help it. They just don't know what they're doing when It comes to treating CF or someone with it (lung infection wise). They start to see you improve and send you home with a pat on the butt or head, ya know, like a kid! I end up back so soon, it's not worth it. I go to Anchorage where the CF doc is in Alaska and see him. I have a Port, and if not accessed no one knows unless Xrays are taken. I prefer to keep it that way. No telling what they may do to or with it, and I don't need it compromised! With your Pic in (had it been me) I'd of been freaking out telling them to start a local and not touch the PIC unless they want me to come after them if I survive! But that's still a scary situation you had! Glad to hear you're okay, and we all can learn something from it!! Keep on Keepin on! wow, thanks for sharing, that’s a scary situation you had! I probably would have freaked out even more in your position if it were her where I live. I live in Fairbanks, Alaska, and I don’t see the docs here unless I can’t help it. They just don’t know what they’re doing when It comes to treating CF or someone with it (lung infection wise). They start to see you improve and send you home with a pat on the butt or head, ya know, like a kid! I end up back so soon, it’s not worth it. I go to Anchorage where the CF doc is in Alaska and see him. I have a Port, and if not accessed no one knows unless Xrays are taken. I prefer to keep it that way. No telling what they may do to or with it, and I don’t need it compromised! With your Pic in (had it been me) I’d of been freaking out telling them to start a local and not touch the PIC unless they want me to come after them if I survive! But that’s still a scary situation you had! Glad to hear you’re okay, and we all can learn something from it!!

Keep on Keepin on!

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